This is a brief post for anyone who hasn’t found a support group to help them deal with celiac disease.
If you are looking for help in adjusting to celiac disease and are active on facebook there are several national and international celiac support groups you can join. I am in a few and find them helpful in a variety of ways: people post concerns and others respond with ideas or answers. Recipes get posted, menu ideas shared as well as discussions on the safety of a wide variety of processed foods from rice mixes to chips to teas and a thousand foods in between. You can put up pictures of tasty food you are serving, ask about places to dine out gf on vacation and share how your meals out went. If you desire you can get personal; discuss your symptoms, treatments and test results in detail with others who suffer similarly.
Some of these are international and some more USA based. Just ask to be added, I have never been turned down by a group and you don’t have to post anything, just treat it as another good celiac resource.
The ones I know about are:
www.facebook.com/groups/glutenfreeconnections/
www.facebook.com/groups/community.glutenfree/
www.facebook.com/groups/Celiacdiseasesupport/
and one for low sugar types: www.facebook.com/groups/481501942001602/
Check them out. I doubt you will regret joining one and the wealth of support is a real boon when you feel “oh so alone” in your gluten free status.
There are also local chapters of national celiac organizations; just google and check them out.
Another site I like is glutenfreephilly.com. I used that site to find a great restaurant in Philadelphia last week for dinner after the flower show. Had used it once before – works all over PA, NJ and Delaware.
It sure can’t hurt to have more resources for help especially if you are new to being gluten free.